Hanging in there

Steve continues to do well. We actually just passed an entire week without seeing a doctor of any kind! WOO HOO! Not that we don't like them but we'd rather spend our time doing other things!

We do have appointments today and tomorrow but those are follow-ups so we don't expect anything out of the ordinary to happen.

Steve still says he feels better than he has in a very long time. He seems so be adjusting to the trach in a very unusually quick and problem free way. Still no suctioning and no pain, in fact the soreness is pretty much all gone. One thing he has had to get used to is the fact that there is nothing there to warm the air when he breathes. When you breathe through your nose or mouth the air is warmed before is hits your lungs. Gods wonderful design! But when you breathe through a plastic tube there is nothing warming that air. Makes for a bad chest ache! So he tries to remember to keep it tucked in his shirt. I did get him some bandannas yesterday so he's going to try wrapping those around his neck and see if that helps.

So all things considered the Thomas Zoo is doing well. We kind of feel hungover and it's strange to not be in constant crisis mode, or waiting for the other show to drop. I do admit that night time is a little weird and I have to stop myself from checking if he is alive. He is so still and so quiet. I am now remembering when I feel that fear that God is faithful and I have to trust. It was funny this morning. I guess a pillow occluded his trach and he let out a little snort, hadn't heard that since the night before surgery....and I was thankful! {not that he snorted...thankful he doesn't snort anymore!}